Dull wednesday, nothing on the calender, so roped in to doing some gardening, well sorting out plant pots that are to heavy for herself !!
If any one is doing anything exciting today, then let us know.
Enjoy your day people.
Sherri, if you look in today, thought of Phil very much yesterday as I printed out a photo of Hilary.
Morning Chris xx You are the proverbial Sparrow xx Bad news I am afraid, one of my LOL ladies has just posted that her 50 year old husband is in hospital with brain mets and bleeding of same. He hadnt been well for a few days, then suddenly this. We are all in shock, me especially. He was only diagnosed a short while ago.......So much for dads oncologist saying she has NEVER come across PCa travelling to the brain.......Prayers please Guys for another family soon to be going through harrowing times xx
ReplyDeleteIf ANYBODY has ANY GOOD NEWS out there, then PLEASE share it with us ! I am cracking like an egg here Guys xx
Elise, do you have a name for OH ?
ReplyDeleteHow is does it spread to the brain, does anyone know ?
I'm normally the early bird as Shirl's computer is beside the dining table, and I turn on to read the news, and to see what has been written last evening.
Kims husband is called Paul, he is 50....The mets are generally established in the skull bones Chris. This is a very thin bone in the body, and, over time, it basically eats through this, and can then have access to the brain. Dad had skull mets when first diagnosed, they never ever followed this up, despite my pleas over recent weeks, then the oncologist was stunned to see 3 massive brain tumors on dads scan......I told her that this is PCa, its what it does and she needs to re educate herself and others about it....or words to that effect ....[!]
ReplyDeleteso terrible, just one shock after another at the moment. I AM WARNING ALL YOU GUYS NOW !!! PLEASE LOOK AFTER YOURSELVES, I CANNOT TAKE ANY MORE JUST NOW xxxxx
Morning all : )~
ReplyDeleteHey Elise? That is yet more terrible news. Just 50yrs old?
This dasmn disease is taking a heavy toll this year.
Are Kim and Paul on the PCC and under what ID?
Kim and husband Paul have been added to my sisters "healing / prayer list.
ReplyDeleteIf anyone else knows or wants someone added let me know, YOU are ALL prayed for on a regular basis anyway.
Chris xx thank you xx and please thank your sister xx
ReplyDeleteGeorge, she is kimallen on PCC. I have posted a new topic under friends and family to ask everyone for their thoughts and prayers. I have also emailed the moderators to clear the topic asap or else I walk.....
Bastard fucking disease........HOW can the medics NOT see these things George ?? Why are they so bloody thick about this disease ???
Morning all....just back from The Downs......See a lone hang glider up there,& thought much to wind for that, & as the parachute got airborn,it dragged the poor guy along the grassed area,& after a few hairy somersaults,he gave it up as a bad job...He.had all the gear on & looked just like a paratrooper......
ReplyDeleteElise..xx..Sorry to read that....5O is no age,& they must be devastated... I was concerned for myself that i had skull/brain mets developing,until scans gave me an all clear,but still have tinnitus & high B.P......i have another body scan next week,to see how R.T.went...
Pot luck if you get a good Onco......grill them every time & take nothing for granted..
John xx I despair, I truly do my dear friend xx
ReplyDeleteMorning everyone.
ReplyDeleteThis is without doubt the worst time I can remember in the 6~years or so that I have been aware of this desease.
At the moment it may be difficult to look beyond the present 'doom & gloom' but things will get better.
Elise, stick in there.
Our thoughts and prayers to all at this difficult time.
Elise, a good oncologist is hard to find. TOO DAMN HARD.
ReplyDeleteI've been watching posts carefully for almost seven years and it seems to me that only a tiny minority of us have a competent, friendly, and listening oncologist in whom we can place our trust.
We've all seen horror story after horror story. It's obvious that unless you're well enough to stand up for yourself and play hell when faced with incomptence then you have little hope of a longer life. But a lot of guys are too sick and too tired to face any more hassle, and they are left to fall by the wayside.Their families face heartbreak and frustration.
WHY IS IT LIKE THIS?
Mike xx What can I say ? I too have NEVER known times like these.....Guys xx PLEASE look after yourselves, otherwise I will just fall apart and never be heard of again xx
ReplyDeleteMike xx fondest love and thanks to you and Kath xx
George xx Very true my handsome xx Hopefully, I was able to educate dads oncologist a little....well, after what I said to her it must have hit home, as she was able to convince the Coroner that no PM was necessary on dad.....BUT it should NEVER have to be like that.....
George, as you say too many men are too sick ........ , Because, as I see it , too many men are being diagnosed too F... ,flipping, late. WHY won't all men get themselves tested at the first signs of something being wrong with waterworks ?
ReplyDeleteITV aren't giving access to "this morning" yet.
I have no access here to ITV Player at all. If any of you Guys can down load, or tell me if there is a YOU TUBE link I would be very grateful xx
ReplyDeletehttp://www.itv.com/thismorning/health/prostate-cancer-clinic/
ReplyDeleteThis is the link to 'This Morning'. I have no access in ROI so have a look Guys, and tell me what you think please xx
thanks for link......not seen first bit.....xx
ReplyDeleteGeorge and Elise, wen I say i'll do something, I do it, email forwarded on.
ReplyDeleteGot it xx Thank Chris xx
ReplyDeleteA few 'groan' jokes
ReplyDeleteThe Grim Reaper came for me last night, but I managed to beat him off with a vacuum cleaner. Blimey, talk about Dyson with death.
They've opened a new shop across the road selling camouflage clothing but I have my suspicions something weird is going on. Yesterday I saw 20 people go in but I never saw anyone coming out
I've been on the phone for ages trying to book tickets for an Elvis tribute act, but it keeps asking me to press 1 for the money, 2 for the show......
A friend of mine moved into a new house at the weekend so I took him over a couple of radiators. Just a little house warming present.
I've just heard the window cleaner shouting and swearing outside my house.I think he's lost his rag.
I went to my allotment last week and found someone had covered it with 2 inches of soil. I went again yesterday only to find it covered again with another 2 inches of soil. The plot thickens!!!
A mate of mine recently admitted to being addicted to brake fluid. When I quizzed him on it he reckoned he could stop any time.....
A new middle east crisis erupted last night as Dubai Television was refused permission to broadcast 'The Flintstones'.
A spokesman for the channel said....'A claim was made that people in Dubai would not understand the humour, but we know for a fact that people in Abu Dhabi Do.'
My son's been asking me for a pet spider for his birthday, so I went to our local pet shop and they were £70!!!
Flip this, I thought, I can get one cheaper off the web.
Statistically, 6 out of 7 dwarves are not happy.
I start a new job in Seoul next week.. I thought it was a good Korea move.
I was driving this morning when I saw an RAC van parked up. The driver was sobbing uncontrollably and looked very miserable. I thought to myself ‘that guy’s heading for a breakdown’.
Elise, it was a good 16 mins worth, thanks for the link.
ReplyDeleteChris xxxx
In case anyone missed Elise's message about arrangements (on her other posting about her dad), here is a copy:
ReplyDeleteFuneral for Dad will be the following :-
1pm Monday 28th November 2011
St Edmond Campion R/C Church
2 Watcombe Road
Oxfordshire
OX9 5QJ
Telephone 01491 612431
http://www.birminghamdiocese.org.uk/parish_directory_detail.asp?parish=190
Internment afterwards at
St Marys Church
Chalgrove
Oxfordshire
http://www.chalgrovechurch.org/stmarys_churchyard.html
Funeral Directors
Surman & Horwood
The Green
Crowell
Nr Chinnor
Oxfordshire
OX39 4RR
Tel: 01844 351323
Flowers to the above by 11am on the morning of 28th November 2011
http://www.surmanandhorwood.com/id4.html
Refreshments and buffet afterwards at the village hall in Chalgrove.
George xx thanks for that, didn't want to crash this blog xx Forgot to add that the church is in WATLINGTON xx
ReplyDeleteIt is sad for any man to die at an age as young as 50. I often joke about reaching my "best before" or "use by" date of three score years and ten and feel that any years over 70 will be a bonus - i never expected to hit 70 anyway. And it is a trusim that even if we are 'cured' after a prostate cancer diagnosis, that does not make us immortal. There is a 100% mortality rate at age 120 and the life expectancy tables only give 6 months life expectancy at age 119 (they really do!!).
ReplyDeleteI used to be astounded at the apparent incompetence of doctors, especially urologists and oncologists but the more I learned, the more I began to understand just how complex this disease is. There are at least 24 varieties that have been identified - see http://www.yananow.org/24Variants.pdf if you haven't seen anything on this previously. The interaction of each of these varieties with individuals is also variable, depending on age, immune system, diet, size, fitness and on and on and on. So essentialy all the medical people can do is a 'best guess' approach.
I don't want to start an argument about PSA tests and their values, but it is simlistic to say that if every man was tested early they would not be at risk from prostate cancer. The facts are that most of the disease discovered in younger men are of the indolent form which are unlikely to cause death: in those unfortunate cases where the disease is more aggressive, there is unlikely to be any variance in the ultimate outcome.
If I can givre an example outside of this emotional issue, one of our beloved dogs - my boy Bilbo - was not too well over the weekend. There was nothing we could put our finger on except that he wasn't himself and he vomited a couple of times - which he has done over the years. We took him to the vet - a very caring, good man - who could find nothing wring and suggested that he had some form of stomach upset. We asked if he would do a blood test for kidney disese because we had lost another dog his age spme years ago from this common illness in older dogs. The vets said he didn't think that was necessary and suggested we give Bilbo a pill to settle him. That didn't help so we insisted on the blood test the following day. The vet was surprised at the outcome which showed severe kidney failure. Bilbo is on a drip now for the second day and we are hoping that tomorrow he will have recovered sufficiently to come home.
This may seem a small matter to be discussing on this list, and I only raise it to show how unpredictable diagnosis can be - it rtuly is mjore an art than a science. The vet was very apologetic and acknowledged that without our insisting on the tests the problem would not have been diagnosed until it was probably too late - and it may be anyway because there is no 'cure' for many of the chronic kidney conditions.
I wish you all the best for a good outcome with your beloved 'Boy Bilbo' Terry.
ReplyDeleteI don't consider it a small matter at all. Quite a few of us PCa guys have been absolutely heartbroken when our faithful hound has lost his fight.
When I was diagnosed and told I had only 2 or 3 years to live, my own dog Khan became more precious than ever to me,
I fully expected him to outlive me, and I was worried sick about how Lynn would cope with such a big, energetic rascal....and on our daily walks I shared more of my fears and worries with him than I did with any person - including my wife and family.
He was my confidante, my constant companion. Always very much a 'one man' dog, I loved him to bits.
When he died in my arms in March 2010 I was completely heartbroken. I still think of him everyday, and miss him like crazy.
The debate about PSA testing will go on and on. Personally, I wish I had been tested at 50, and then perhaps I could have taken some action, and my disease wouldn't have progressed so much as it did in the following four years.
Those 24 varieties you highlighted? I'm sure there a million more types. Every single one of us reacts differently to the cancer and to the treatment.
I firmly believe it's all down to our unique genes. The day they can tailor-make a drug to combat those unique cancer cells in each of us is the day we're all praying for. I'm sure that day is not that far away.
As for oncologists and urologists...it's the sheer 'bad attitude' and appalling ignorance shown by so many of them which causes fury amongst us all.
Worst of all is when they refuse to LISTEN to us.
I've kicked my urologist into touch - he was a disgraceful example of a bad doctor, and I thank God I have a good oncologist who is everything a consultant should be.
But Terry, those of us lucky enough to have such an onco are incredibly lucky. You know by your own experiences.
It just isn't good enough.